Teen With Rare Disease Gets Own 'Dream' Room - Los Angeles News | FOX 11 LA KTTV

Teen With Rare Disease Gets Own 'Dream' Room

Posted: Updated:
Julian Julian

A teen, battling a rare disease, just got a chance to have something he's never had before, his own room. With the help of a few good Samaritans, they're making that dream come true.

The look on their faces say it all. The Sweet Dreams Foundation created a stunning dream room for Julian, a teen with a deadly genetic disease called X-linked adrenoleukodystrophy.

"This morning I came in bright an early before everyone else got here and brought him in the room, sat him down on the carpet and let him just feel everything that was going on in here," says Jenn Richardson, the Sweet Dreams Foundation Founder.

Murals pop from the wall, there's a gate to heaven design that Julian can feel. And the clouds on his ceiling light up.

"You can load a different video and you can change the hue and the color," says a designer as he shows us the control tablet.

The designers say Julian's room was an easy piece to do because he knew exactly what he wanted.

"His dream was heaven and he also loves animals and stuff," says Amy Bagshaw, the muralist.

Many people poured time and money to make Julian's dream room vision a reality. Some of them have never even taken time to visualize their own paradise. Jenn, lives with mom and dad.

"It's actually been a great thing, because realizing how important it is not having your own space," Jenn quips. "But so grateful my parents have let me move in so I can focus on Sweet Dreams."

It'll be a while before Jenn sees her own dream room, and now, there's a chance Julian will never see his. He lost his eyesight just last night, hours before he was supposed to see his new safe haven.

Julian's room came courtesy of the Sweet Dreams Foundation. The California-based charity has done this same thing for several other children diagnosed with life-threatening illnesses.

  • Local NewsMore>>

  • PECO Investigating Gas Odor in Phila Region

    PECO Investigating Gas Odor in Phila Region

    Saturday, August 30 2014 10:15 PM EDT2014-08-31 02:15:46 GMT
    A spokesperson for PECO confirms to Fox 29 News that crews are trying to find the source of a gas odor that has resulted in hundreds of calls to PECO on Saturday.About 400 calls have been placedto PECO as of 4pm Saturday; that is an elevated number of calls than a normal day, the spokesperson says. Crews that are trained in gas odor response are spread throughout the area to try to pinpoint the source of the odor. Reports of gas odors have been made by customers in Delaware, Montgomery, Chest...
    A spokesperson for PECO confirms to Fox 29 News that crews are trying to find the source of a gas odor that has resulted in hundreds of calls to PECO on Saturday.About 400 calls have been placedto PECO as of 4pm Saturday; that is an elevated number of calls than a normal day, the spokesperson says. Crews that are trained in gas odor response are spread throughout the area to try to pinpoint the source of the odor. Reports of gas odors have been made by customers in Delaware, Montgomery, Chest...
  • Students Prepare To Return To School With Free Supplies

    Students Prepare To Return To School With Free Supplies

    Saturday, August 30 2014 6:15 PM EDT2014-08-30 22:15:25 GMT
    We all know Labor Day Weekend is the unofficial end of summer, but it also mean something else...back to school.
    We all know Labor Day Weekend is the unofficial end of summer, but it also mean something else...back to school.
  • Summer Heat Returns

    Saturday, August 30 2014 4:11 PM EDT2014-08-30 20:11:25 GMT

    The rest of the holiday weekend continues to look warmer and unsettled. Shower and thunderstorm chances increase late Sunday and Labor Day.

    The heat and humidity will continue to expand Sunday into Labor Day. There is a risk of scattered showers and thunderstorms both day.  Best chance will be in the afternoon and evening. 

    Sunday (88/69): Clouds/Storm

    Monday (90/71): Clouds/Storm

    Tuesday (92/72): Clouds/Storm

     

     

Powered by WorldNow

KTTV FOX 11
1999 S. Bundy Dr.
Los Angeles CA 90025

Main: (310) 584-2000
News Tips? (310) 584-2025

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices