Waterford teen one of ten family members battling rare disorder - Los Angeles News | FOX 11 LA KTTV

Waterford teen one of ten family members battling rare disorder

Posted: Updated:
WATERFORD, Mich. (WJBK) -

The Waterford community is rallying around a teenager with a rare genetic disorder. Ryan McMann, 18, needs a life saving bone marrow transplant. Sunday, a bowling fundraiser was held at Airway Lanes in Waterford.

Click on the video player to watch Robin Schwartz's report.

The Waterford Kettering senior has a rare disorder called X-Linked Lymphoproliferative Disease or XLP. He's one of ten family members, all male, including his grandfather and cousins, who have the genetic mutation. The family is believed to be the largest group of family members in the world with the disease. Doctors say a bone marrow transplant is the only cure.

"I was diagnosed 2 years ago after word got around the family that we had a genetic disease that compromised our immune systems," McMann told Fox 2.

"We're blessed that the boys are doing well," added his mother, Lisa Angona. "In other XLP families they don't survive."

Right now, Ryan is being treated at U-M Mott Children's hospital in Ann Arbor. The fundraiser was held to help cover his medical costs and to encourage people to sign up for the bone marrow registry. A donor must be 18-60 years old and in good health. Doctors say the bone marrow replaces itself in four to six weeks. Click HERE to learn more about bone marrow donation.

"It's nice that all these people genuinely cared enough to come," said Sierra Janette, one of the volunteers. "Even if they just donated a couple of dollars it still helps out so much and it makes you feel good inside."

Click HERE if you would like to donate to Ryan's medical fund

The family says they're overwhelmed by the support and hopeful about finding the right match for Ryan. If all goes well, he hopes to have the transplant this summer and attend college within a year following the procedure. His classmates have no doubt and they're cheering him on.

"His outlook is amazing," said classmate Jake Plautz. "Every day he come into class with high spirits there's nothing that can stop that kid."

"I feel like I'm gonna get through this," McMann added with a smile. "I couldn't be anymore positive now having all these people back me."

  • Local NewsLocal NewsMore>>

  • Federal sting ends in gunfire in Highland Park

    Federal sting ends in gunfire in Highland Park

    Saturday, August 2 2014 12:03 AM EDT2014-08-02 04:03:37 GMT
    In what started as a traffic stop, resulted in a shootout between federal agents and a pair of men known to have illegal assault rifles in Highland Park.Police say a task force of ATF and FBI agents who had previously set up a meet with two men, known to have AK-47s and AR-15s in their Chevrolet Cavalier, began to move in. The traffic stop was made near Oakland and Victor about 7:30 p.m. Friday. The car rammed the federal agents vehicle and the driver opened fire with a handgun. The agents re...
    In what started as a traffic stop, resulted in a shootout between federal agents and a pair of men known to have illegal assault rifles in Highland Park.Police say a task force of ATF and FBI agents who had previously set up a meet with two men, known to have AK-47s and AR-15s in their Chevrolet Cavalier, began to move in. The traffic stop was made near Oakland and Victor about 7:30 p.m. Friday. The car rammed the federal agents vehicle and the driver opened fire with a handgun. The agents re...
  • Officer hit by drunk driver on Detroit's east side

    Officer hit by drunk driver on Detroit's east side

    Friday, August 1 2014 11:15 PM EDT2014-08-02 03:15:06 GMT
    An officer was hit by a driver believed to be drunk Friday at 8 mile and Alcoy on Detroit's east side.Police say officers were investigating at the scene of a traffic accident when the driver ran through the barricade and hit the woman.She was transported to an area hospital with non-life threatening injuries and the drunk driver was arrested. Police had been conducting an investigation of the original accident in which one of the drivers died. Eight mile is closed in east bound lane by Alcoy.
    An officer was hit by a driver believed to be drunk Friday at 8 mile and Alcoy on Detroit's east side.Police say officers were investigating at the scene of a traffic accident when the driver ran through the barricade and hit the woman.She was transported to an area hospital with non-life threatening injuries and the drunk driver was arrested. Police had been conducting an investigation of the original accident in which one of the drivers died. Eight mile is closed in east bound lane by Alcoy.
  • Man arrested after trying to wrestle gun from officer in Detroit

    Man arrested after trying to wrestle gun from officer in Detroit

    Friday, August 1 2014 9:32 PM EDT2014-08-02 01:32:44 GMT
    A man was arrested after he went for an officer's gun trying to wrestle it away from Detroit Police, causing the weapon to fire.SkyFOX was over the scene on Manning Street in Detroit, where the incident occurred Friday,The bullet didn't hit anyone and police took a 27-year-old man from Roseville into custody.Police say the home was a known drug den, and when officers drove by the property -- four people ran from the home.The officer and suspect were treated at a hospital for non life threaten...
    A man was arrested after he went for an officer's gun trying to wrestle it away from Detroit Police, causing the weapon to fire.SkyFOX was over the scene on Manning Street in Detroit, where the incident occurred Friday,The bullet didn't hit anyone and police took a 27-year-old man from Roseville into custody.Police say the home was a known drug den, and when officers drove by the property -- four people ran from the home.The officer and suspect were treated at a hospital for non life threaten...
  • Robin SchwartzRobin SchwartzMore>>

  • New DTE app lets users check their energy use

    New DTE app lets users check their energy use

    Friday, August 1 2014 7:59 PM EDT2014-08-01 23:59:24 GMT
    Joel Miller, a senior strategist with DTE Energy, gave us some insight -- on DTE insight. The new, free smart phone app helps customers see their energy use hour by hour -- or minute by minute."By studying your data and by looking around your home you can discover what things are using energy," Miller said. Then, you make choices -- replace appliances or physically turn off whatever's not needed -- or is wasting energy, and save money on your energy bill in the process."I think for a lot of u...
    Joel Miller, a senior strategist with DTE Energy, gave us some insight -- on DTE insight. The new, free smart phone app helps customers see their energy use hour by hour -- or minute by minute."By studying your data and by looking around your home you can discover what things are using energy," Miller said. Then, you make choices -- replace appliances or physically turn off whatever's not needed -- or is wasting energy, and save money on your energy bill in the process."I think for a lot of u...
  • Rescue mission offers second chance to those who need it most

    Rescue mission offers second chance to those who need it most

    Friday, August 1 2014 6:47 PM EDT2014-08-01 22:47:11 GMT
    Mark Jones whips up a quick house salad with bacon, and he does it with pride.Not long ago -- he was homeless and living in a shelter. Now, thanks to Detroit Rescue Mission Ministries -- he has big news to share."I just got hired in on the 21st," Jones said.A full time job cooking in the kitchen at Cornerstone Bistro in Highland Park. He completed a 12-week training program which includes passing the state certification exam. And the 48-year-old has plenty of specialties."I cook lasagne, gumb...
    Mark Jones whips up a quick house salad with bacon, and he does it with pride.Not long ago -- he was homeless and living in a shelter. Now, thanks to Detroit Rescue Mission Ministries -- he has big news to share."I just got hired in on the 21st," Jones said.A full time job cooking in the kitchen at Cornerstone Bistro in Highland Park. He completed a 12-week training program which includes passing the state certification exam. And the 48-year-old has plenty of specialties."I cook lasagne, gumb...
  • Detroit Police's 'Green Machine 40' stages crackdown of suspected drug houses

    Detroit Police's 'Green Machine 40' stages crackdown of suspected drug houses

    Thursday, July 31 2014 8:34 PM EDT2014-08-01 00:34:02 GMT
    Heavily armed members of the Detroit Police Special Response Team move in -- swarming this house on Tacoma with the state police helicopter overhead.This residence is believed to be a drug house where people were selling cocaine. No evidence and no arrests were found this time, but Detroit Police Chief James Craig says the message is loud and clear"We'll come back to this location and we'll send the owner a nice note and if we have to come back again we'll take it," said Craig. Elsewhere ther...
    Heavily armed members of the Detroit Police Special Response Team move in -- swarming this house on Tacoma with the state police helicopter overhead.This residence is believed to be a drug house where people were selling cocaine. No evidence and no arrests were found this time, but Detroit Police Chief James Craig says the message is loud and clear"We'll come back to this location and we'll send the owner a nice note and if we have to come back again we'll take it," said Craig. Elsewhere ther...
  • Download the FOX 2 Apps


  • FOX 2 News Five-Day Forecast
Powered by WorldNow

KTTV FOX 11
1999 S. Bundy Dr.
Los Angeles CA 90025

Main: (310) 584-2000
News Tips? (310) 584-2025

Didn't find what you were looking for?
All content © Copyright 2000 - 2014 Fox Television Stations, Inc. and Worldnow. All Rights Reserved.
Privacy Policy | New Terms of Service What's new | Ad Choices